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medical_havoc's Journal

J&A [Nightmare on Hospital Street]
7 October
External Services:
  • medical_havoc@livejournal.com
We are two women going through the ups, downs and corckscrews of the medical world. Between paperwork, refills, and the chaos of being thirty-something and feeling fifty-something, we find strength in stoicism and fall apart together. We are each others support. Here we share our stories, and invite you to share as well. We are not looking for sympathy, but perhaps to open eyes to the disaster that the United States medical system is, and offer support for those who are suffering right alongside us.

Jane is 32. She suffers from stage four endometriosis. She has had a full hystorectomy and still suffers from sever pain every day. She is a writer and hopes to publish her book very soon.

Anne is 27. She has Crohn's disease and suffers from pain every day. She is pursuing a law degree and hopes to work in prosecution someday.

Both women are continuing their education and pursuing degrees in fields they love.

Misery loves company. And support comes from many different places.

Anne: I am 27 years old. Approximately 6 years ago I was diagnosed with ulcerative colitis but unfortunately lost my medical coverage, felt fine, and continued on with life as normal. Just over a year ago I was hospitalized and ultimately (correctly) diagnosed with Crohn's disease. This disease is auto-immune in nature and essentially means that my body is fighting itself and just about anything I put in it. I don't absorb nutrients, vitamins, or even food sometimes. My weight fluctuates between 130 lbs. and 175 lbs. and sometimes it's a drastic fluctuation (10 lbs. in a week without dieting) which means my drawers carry jeans from size 7 to 14. I have been on temporary disability for a year and that has now been ripped from underneath me. I am struggling right now with paperwork on a daily basis trying to figure out how I'm going to support myself; government assistance in the short term and (hopefully) full or at least long term temporary disability in the long run. The government programs are no help either. I have county health care and that's more than a nightmare in and of itself.

Don't be strayed. I have dreams and goals and am still attempting to pursue them even though I can't get out of bed some days. I have pushed through these diagnosis' and have two bachelors degrees and am on my way to a masters as we speak. I do not abuse the government systems, nor do I plan to be on them forever. This disease is a roadblock, not a death sentence, and I will find my detours wherever I can.